Dear Jann
We will all miss you and thank you for your kindness & friendship & all your hard work over the years with the newsletter. Hope you enjoy your new life in QLD and keep in touch. XXXX
Monday, March 09, 2009
Sunday, March 08, 2009
FEB 2009 NEWSLETTER
Hi Everyone,
Hope you all had a lovely break over Christmas and the New Year, seems a long time ago now that we are all back into the swing of our routines. Had a great first meeting for the year on 4th February, with lots to discuss and decisions to be made for this year. A summary below:
BI Bank
We have a balance of $822 in our account, $350 of which is a grant received from Department of Health Services - Thanks to Jo for submitting an application and succeeding.
We Need Our Own Banner
After holding our stall at the Mornington Wine and Food Fest, it was obvious we need to have our own banner to display and promote us at such functions. The meeting decided the background should be white, with pink logo, and from there we were stuck. We've decided to run a competition with suggestions of design for the banner, final decision by vote. The Peninsula Dragon Flies have a great banner, with shades of pink and purple dragon flies, and the slogan "Paddling for Life". We need something similar - a really catchy, meaningful slogan on an eye catching banner [sorry, no boobs !].
We'll run the competition for the next couple of months, winner will receive a Peninsula Health Medispa gift voucher. So get those creative minds working, and bring any suggestions and designs to the next meeting, we'll collate and run in each Newsletter until the conclusion of the competition.
Breast Intentions T Shirts
We are looking at costs of having our own T Shirts - those involved will bring the info to the next meeting. If you have any contacts in this area, please contact Jo.
Superannuation and Insurance Advice Line
Ann Saville has found the advice line below very helpful: Maurice and Blackburn Super and Insurance Advice Service for people with cancer and other:
1800 810 812 for free legal advice
A Raffle - for Fund Raising for Jo's participation in the Amazon Heart Ride in May
There was much discussion about a raffle to sponsor Jo's ride in the Amazon Heart Ride from Brisbane to Sydney 20 - 29th May. This is run is to raise Breast Cancer awareness and funds for Peer Group Support Harley Davidson have lent 20 Harley's for those without bikes.
The Raffle so far: - A Choice Of:
Lyndall Caldwell oil painting of Mother's Beach Mornington - 600 mm x 900mm.
OR
Family Pack 1:
$200 Monash Hire Voucher [hire out trailer, horse floats, floor sanders, lawn aerators, cherry pickers, kangas etc]; Yoga By The Bay Voucher; Body Products; Foot Massage; Jamie Oliver Cook Book; Cricket Book; Ipod Shuffle; 20 bike; sports balls; Monster Truck; Books; Large Eeyor; Pure Earth Products
Second Prize:
Family Pack 2:
20" Bike; BC Scrabble game; movie passes; $20 toy voucher; Fischer Price baby toys; Jamie Oliver Cook Book; Cricket Book; sports balls;
OR
ipod shuffle
OR
Portable DVD player and digital photo frame
OR Mt Martha Optical $100 Voucher
Still waiting on response from Minzenmay, Farrells and Michelle-Ann for vouchers. Tickets are $2 each or 3 for $5, we'll have more books of tickets at the next meeting.
Plans for This Year's Meetings
A rough outline of guests speakers/activities discussed for this year's meetings - Tai Chi; Yoga by the Bay; Reconstruction; Sexuality; Judy Sammut from Encore.
An Article from the Cancer Council Newsletter
Jo found this article in a recent Cancer Council Newsletter and thought it worth sharing:
Positive thinking does not improve breast cancer outcomes
The state of mind of women with breast cancer has no influence on their chance of having a recurrence or survival, according to a recent study. This research contradicts widespread belief in the power of positive thinking. The paper ‘ Psychosocial Factors and Survival of Young Women with Breast Cancer’ found no correlation between a breast cancer patients mental wellbeing and their ultimate chances of avoiding recurrence and surviving the disease. A diagnosis of breast cancer is frequently associated with psychological distress and many patients believe that their psychological response affects their prognosis. Previous research has produced conflicting results. These findings provide the strongest evidence to date that while there can be lots of emotional and social benefits of thinking positively, including improving quality of life, a positive frame of mind does not have a significant effect on breast cancer recurrence or survival. Many women blame themselves for not having had a positive enough attitude. We can now tell them that it would not have changed their outcome. Associate Professor Kelly-Anne Phillips CCV & Peter Mac Callum CC
The Cancer Council is running Telephone & Internet Support Groups - support for people with cancer within the comfort and privacy of home. These groups operate via teleconference [using a normal phone] or real-time private chat room over the internet. These groups are professionally facilitated, and meet weekly one hour over a period of 6 - 8 weeks. These groups are available for people with advanced cancer, in the 20 - 50 age group, 2 years post treatment, cancer survivors, carers of people with cancer. More info 13 11 20, or visit www.cancervic.org.au; or email csg@cancervic.or.au.
News from BCNA – www.bcna..org.au
Medicare Rebates for Annual MRI
You may recall that in late December the Federal Government announced a new scheme to provide Medicare rebates for annual MRI scans for women at high risk of developing breast cancer. BCNA is pleased to announce that the rebate commenced 2 February 2009.
To be eligible for the rebate, women must be under the age of 50 and have either have a known genetic mutation or a strong family history of breast cancer. The rebate does not apply to women who have previously been diagnosed with breast cancer. In addition, referrals for MRI must be made by a specialist, and must be conducted on a Medicare-eligible MRI unit. A list of eligible units will soon be published and we will update you when this information is available.
For more information about the eligibility criteria, and what constitutes strong family history, visit the BCNA website. If you have any questions or comments about the rebate, please feel free to contact BCNA by email policy@bcna.org.au or phone 1800 500 258 (freecall).
Two Surveys/Documentary - See articles below from BCNA
1. "I am making a documentary focusing on the long term impact of a breast cancer diagnosis on women who were 45 or younger when they were diagnosed. Entitled The Road Back to Tomorrow, the film will explore the impact on life today when we think that we may not have a tomorrow.
The impetus for the documentary comes both from my own experience (I was diagnosed with breast cancer at the age of 40 in 2004) and from what I see in contemporary media. Stories tend to look at the immediate impact of diagnosis and treatment, or on the women who die from the disease. There is little if anything in the general media about the longer-term psychological journey of recovery, about how women find their way slowly back to a sense of tomorrow and about the decisions they make along the way, many of which have far reaching implications.
Further information is available at http://www.robynwinslow.com.au/sonnette/projects.html
I am looking for women who were diagnosed when under the age of 45 and who are at least five years on from that experience. I encourage you to view the material on the website and, if you would like to be considered for a profile within the documentary, please submit an expression of interest through the website.
Robyn Winslow, Director"
2. From Research & Policy Officer - BCNA:
As a member of our Review & Survey Group I'd like to let you know about an opportunity to participate in an important research study about young women and the fear of cancer recurrence. The research is being conducted by Dr. Belinda Thewes and Professor Phyllis Butow at the School of Psychology from the University of Sydney . It would be great if you could have a read and see if you are able to participate. This research study will provide vital information about the experience of young women survivors of breast cancer and the impact that fear of cancer recurrence has on their lives. The researchers are seeking 200 women to participate in this project. What's involved?
Initially, the completion of a 45-60 minute secure online questionnaire;
A second follow up online questionnaire of approximately 5-10 minutes two weeks later;
If you do not wish to complete the survey online, paper copies of the survey along with pre paid return envelopes will be provided;
A few participants will be invited to take part in a follow up telephone interview. This is part of the study is optional.
Who's eligible to take part? Women who:
Were diagnosed with early-stage breast cancer (stage 0-2) at least 1 year ago;
Were aged 45 years or younger at the time of diagnosis;
Have not had a recurrence of their cancer.
How do you get involved? If you would like to participate or find out more information, please contact Dr Belinda Thewes on (02) 9036 7207 or email at bthewes@usyd.edu.au.
Next Meeting:
Wednesday 4th March – The Bays Hospital - 7.00 pm
April !st where the raffle will be drawn
Moving On
Ian and I are moving to live in Cairns , for a new life, and to spend time with our daughter Jane, granddaughter Iluka, and son in law Mitch. We have sold our house [finally] and settlement is 1st May. It will be very hard leaving our son Matt and his wife Clare, they will have to visit us often. The next meeting will be my last with the group, unless I'm back in Melbourne around the first Wednesday of the month for any of my BC appointments and then I'll definitely come along and catch up with everyone.
I don't think I can put into words how grateful I am for the support, wisdom, fun and love I have received from you very special, beautiful ladies, especially in the early days after diagnosis and treatment. Our mutual journey leads us on a fragile path, and I am blessed that I have your friendship and encouragement along the way.
Newsletter
So now, of course, there's a vacancy for putting the Newsletter together. Jo usually sends me Cancer Council stuff, the rest we usually talk about at the meetings, and I put it together. It's pretty easy. If you are interested in doing the Newsletter, please contact Jo or me.
See you at the next meeting.
Take care,
Jann
Hope you all had a lovely break over Christmas and the New Year, seems a long time ago now that we are all back into the swing of our routines. Had a great first meeting for the year on 4th February, with lots to discuss and decisions to be made for this year. A summary below:
BI Bank
We have a balance of $822 in our account, $350 of which is a grant received from Department of Health Services - Thanks to Jo for submitting an application and succeeding.
We Need Our Own Banner
After holding our stall at the Mornington Wine and Food Fest, it was obvious we need to have our own banner to display and promote us at such functions. The meeting decided the background should be white, with pink logo, and from there we were stuck. We've decided to run a competition with suggestions of design for the banner, final decision by vote. The Peninsula Dragon Flies have a great banner, with shades of pink and purple dragon flies, and the slogan "Paddling for Life". We need something similar - a really catchy, meaningful slogan on an eye catching banner [sorry, no boobs !].
We'll run the competition for the next couple of months, winner will receive a Peninsula Health Medispa gift voucher. So get those creative minds working, and bring any suggestions and designs to the next meeting, we'll collate and run in each Newsletter until the conclusion of the competition.
Breast Intentions T Shirts
We are looking at costs of having our own T Shirts - those involved will bring the info to the next meeting. If you have any contacts in this area, please contact Jo.
Superannuation and Insurance Advice Line
Ann Saville has found the advice line below very helpful: Maurice and Blackburn Super and Insurance Advice Service for people with cancer and other:
1800 810 812 for free legal advice
A Raffle - for Fund Raising for Jo's participation in the Amazon Heart Ride in May
There was much discussion about a raffle to sponsor Jo's ride in the Amazon Heart Ride from Brisbane to Sydney 20 - 29th May. This is run is to raise Breast Cancer awareness and funds for Peer Group Support Harley Davidson have lent 20 Harley's for those without bikes.
The Raffle so far: - A Choice Of:
Lyndall Caldwell oil painting of Mother's Beach Mornington - 600 mm x 900mm.
OR
Family Pack 1:
$200 Monash Hire Voucher [hire out trailer, horse floats, floor sanders, lawn aerators, cherry pickers, kangas etc]; Yoga By The Bay Voucher; Body Products; Foot Massage; Jamie Oliver Cook Book; Cricket Book; Ipod Shuffle; 20 bike; sports balls; Monster Truck; Books; Large Eeyor; Pure Earth Products
Second Prize:
Family Pack 2:
20" Bike; BC Scrabble game; movie passes; $20 toy voucher; Fischer Price baby toys; Jamie Oliver Cook Book; Cricket Book; sports balls;
OR
ipod shuffle
OR
Portable DVD player and digital photo frame
OR Mt Martha Optical $100 Voucher
Still waiting on response from Minzenmay, Farrells and Michelle-Ann for vouchers. Tickets are $2 each or 3 for $5, we'll have more books of tickets at the next meeting.
Plans for This Year's Meetings
A rough outline of guests speakers/activities discussed for this year's meetings - Tai Chi; Yoga by the Bay; Reconstruction; Sexuality; Judy Sammut from Encore.
An Article from the Cancer Council Newsletter
Jo found this article in a recent Cancer Council Newsletter and thought it worth sharing:
Positive thinking does not improve breast cancer outcomes
The state of mind of women with breast cancer has no influence on their chance of having a recurrence or survival, according to a recent study. This research contradicts widespread belief in the power of positive thinking. The paper ‘ Psychosocial Factors and Survival of Young Women with Breast Cancer’ found no correlation between a breast cancer patients mental wellbeing and their ultimate chances of avoiding recurrence and surviving the disease. A diagnosis of breast cancer is frequently associated with psychological distress and many patients believe that their psychological response affects their prognosis. Previous research has produced conflicting results. These findings provide the strongest evidence to date that while there can be lots of emotional and social benefits of thinking positively, including improving quality of life, a positive frame of mind does not have a significant effect on breast cancer recurrence or survival. Many women blame themselves for not having had a positive enough attitude. We can now tell them that it would not have changed their outcome. Associate Professor Kelly-Anne Phillips CCV & Peter Mac Callum CC
The Cancer Council is running Telephone & Internet Support Groups - support for people with cancer within the comfort and privacy of home. These groups operate via teleconference [using a normal phone] or real-time private chat room over the internet. These groups are professionally facilitated, and meet weekly one hour over a period of 6 - 8 weeks. These groups are available for people with advanced cancer, in the 20 - 50 age group, 2 years post treatment, cancer survivors, carers of people with cancer. More info 13 11 20, or visit www.cancervic.org.au; or email csg@cancervic.or.au.
News from BCNA – www.bcna..org.au
Medicare Rebates for Annual MRI
You may recall that in late December the Federal Government announced a new scheme to provide Medicare rebates for annual MRI scans for women at high risk of developing breast cancer. BCNA is pleased to announce that the rebate commenced 2 February 2009.
To be eligible for the rebate, women must be under the age of 50 and have either have a known genetic mutation or a strong family history of breast cancer. The rebate does not apply to women who have previously been diagnosed with breast cancer. In addition, referrals for MRI must be made by a specialist, and must be conducted on a Medicare-eligible MRI unit. A list of eligible units will soon be published and we will update you when this information is available.
For more information about the eligibility criteria, and what constitutes strong family history, visit the BCNA website. If you have any questions or comments about the rebate, please feel free to contact BCNA by email policy@bcna.org.au or phone 1800 500 258 (freecall).
Two Surveys/Documentary - See articles below from BCNA
1. "I am making a documentary focusing on the long term impact of a breast cancer diagnosis on women who were 45 or younger when they were diagnosed. Entitled The Road Back to Tomorrow, the film will explore the impact on life today when we think that we may not have a tomorrow.
The impetus for the documentary comes both from my own experience (I was diagnosed with breast cancer at the age of 40 in 2004) and from what I see in contemporary media. Stories tend to look at the immediate impact of diagnosis and treatment, or on the women who die from the disease. There is little if anything in the general media about the longer-term psychological journey of recovery, about how women find their way slowly back to a sense of tomorrow and about the decisions they make along the way, many of which have far reaching implications.
Further information is available at http://www.robynwinslow.com.au/sonnette/projects.html
I am looking for women who were diagnosed when under the age of 45 and who are at least five years on from that experience. I encourage you to view the material on the website and, if you would like to be considered for a profile within the documentary, please submit an expression of interest through the website.
Robyn Winslow, Director"
2. From Research & Policy Officer - BCNA:
As a member of our Review & Survey Group I'd like to let you know about an opportunity to participate in an important research study about young women and the fear of cancer recurrence. The research is being conducted by Dr. Belinda Thewes and Professor Phyllis Butow at the School of Psychology from the University of Sydney . It would be great if you could have a read and see if you are able to participate. This research study will provide vital information about the experience of young women survivors of breast cancer and the impact that fear of cancer recurrence has on their lives. The researchers are seeking 200 women to participate in this project. What's involved?
Initially, the completion of a 45-60 minute secure online questionnaire;
A second follow up online questionnaire of approximately 5-10 minutes two weeks later;
If you do not wish to complete the survey online, paper copies of the survey along with pre paid return envelopes will be provided;
A few participants will be invited to take part in a follow up telephone interview. This is part of the study is optional.
Who's eligible to take part? Women who:
Were diagnosed with early-stage breast cancer (stage 0-2) at least 1 year ago;
Were aged 45 years or younger at the time of diagnosis;
Have not had a recurrence of their cancer.
How do you get involved? If you would like to participate or find out more information, please contact Dr Belinda Thewes on (02) 9036 7207 or email at bthewes@usyd.edu.au.
Next Meeting:
Wednesday 4th March – The Bays Hospital - 7.00 pm
April !st where the raffle will be drawn
Moving On
Ian and I are moving to live in Cairns , for a new life, and to spend time with our daughter Jane, granddaughter Iluka, and son in law Mitch. We have sold our house [finally] and settlement is 1st May. It will be very hard leaving our son Matt and his wife Clare, they will have to visit us often. The next meeting will be my last with the group, unless I'm back in Melbourne around the first Wednesday of the month for any of my BC appointments and then I'll definitely come along and catch up with everyone.
I don't think I can put into words how grateful I am for the support, wisdom, fun and love I have received from you very special, beautiful ladies, especially in the early days after diagnosis and treatment. Our mutual journey leads us on a fragile path, and I am blessed that I have your friendship and encouragement along the way.
Newsletter
So now, of course, there's a vacancy for putting the Newsletter together. Jo usually sends me Cancer Council stuff, the rest we usually talk about at the meetings, and I put it together. It's pretty easy. If you are interested in doing the Newsletter, please contact Jo or me.
See you at the next meeting.
Take care,
Jann
Monday, December 15, 2008
Saturday, November 08, 2008
NOVEMBER NEWSLETTER
NOVEMBER NEWSLETTER
Hi Everyone,
The mini field at Cruden Farm last month was absolutely fantastic. Moving [as always], the gardens and setting gorgeous, morning tea delicious and bountiful and the entertainment spellbinding. Our own Lee Murphy, accompanied on vocals by her friend Cheryl, and guitar by Tim brought a tear to many eyes with her very appropriately chosen songs, "I Hope You Choose Dance"; "Amazing Grace"; "You Build Me Up" and "It's a Beautiful World". The lyrics to "I Hope You Choose Dance" are attached below, they are so pertinent to us special ladies. Jo opened the morning, telling the approx 200 attending of her journey and her drive to support others who have breast cancer, as well as raise awareness. The mini field was down by the lake - surrounded by yellow water lilies. Several of our gals helped with the set up of the day and the sale of tickets and merchandise - which raised $2,000 for the Wig Library at PPH, and $2,000 for BCNA. It was a truly beautiful morning - the mood stayed with me all day.
We also had a very successful stall at the Mornington Food and Wine Fest on the 19th. We shared a trestle with the Peninsula Dragonflys under their very quick-to-erect gazebo outside the Grand Hotel, and set up selling some BCNA merchandise and offering Cancer Council pamphlets and info. We attached our pink silhouettes to the Dragon Boat, and also had them in the garden boxes outside the Grand. It really did look great. Many of the hearts we cut out at the last meeting were used for tributes, and all up we raised nearly $800 for BCNA. Thanks to Jo, Gina, Gayle, Ferne, Marilyn, Anne, Lee, Carolyn, Val, Janice and Helen. It was a bit of learning curve for next year - we need to streamline the Cancer Council info, and have more variety of merchandise. We also realised we need a banner, with a great design and slogan. We'll talk about it at the meeting this Wednesday - we're thinking of have a competition, the winner taking the last voucher for a massage at Peninsula Women's Health. We were so impressed with the Dragon Fly's easy-to-erect gazebo Jo bought one for the group from Janice at Anaconda.
NBOCC has launched two new websites:
www.nbocc.org.au/survivorship to assist breast cancer survivors and their families who are facing the challenges of "life after breast cancer".
www.cheekycheckup.com.au which encourages young women to check their breasts, what to look for, and techniques.
A Message from the Lovelocks
The Lovelocks thank you for your company, your beautiful cards, flowers, gifts and contribution to over $2,800 toward ovarian cancer research. Jo, Andrew, Sam, Tom & Katie
Coming UP:
Wednesday 5th November - Next meeting - 7.00 pm at The Bays
We'll chat for an hour or so over a cuppa, then Sally Rackham will come at about 8.15 to give us some pilates upper body exercises.
Sunday 9th November
Dragons Abreast Melbourne Spring Paddle & Picnic. Start time is 9.30 for paddlers, Flower Ceremony 11.30 am. They are paddling to Herring Island from VDBA Yarra compound to Herring Island, where they will hold the Flower Ceremony. You can drive to Herring Island and be shuttled across in the boat. BYO drinks and a plate to share. RSVP to dragonsabreastmelb@yahoo.com.au.
Wednesday 26th November at 6.30 pm
Opening night performance of "Australia" at Sorrento Cinema. Tickets $25, movie starts at 7.30 pm. Enjoy a glass of wine, finger food, wine tasting. Tea and coffee served after the movie. A fundraising event for Peninsula Dragonflys.
November 29th Annual Cancer Survivors Seminar - Free seminar lunch and refreshment provided
The Cancer Council - 100 Drummond Street, Carlton
10:00 - 3:00 pm
This seminar and is open to anyone who has had cancer, their partners, family and friends. Topics include: Understanding cancer related anxiety and depression; Changes in relationships and roles; Problem solving techniques; Money matters including superannuation. Registration essential, RSVP the Cancer helpline 13 11 20 by Monday 24th November.
December 3rd Breast Intentions end of year Christmas Dinner at The Grand in Mornington. 7.00 pm and Kris Cringle
December 5th Sexuality and Cancer - same time, place and info as November 29th session
Take care and see you soon,
Jann
I HOPE YOU DANCE
I hope you never lose your sense of wonder
You get your fill to eat but always keep that hunger
May you never take one single breath for granted
God forbid love ever leave you empty handed
I hope you still feel small
When you stand beside the ocean
Whenever one door closes I hope one more opens
Promise me that you’ll give faith a fighting chance
And when you get the choice to sit it out or dance
I hope you dance. (Dance) I hope you dance. (Dance)
I hope you never fear those mountains in the distance
Never settle for the path of least resistance
Livin’ might mean taking chances
But they’re worth takin’
Lovin’ might be a mistake but it’s worth makin’
Don’t let some hell bent heart leave you bitter
When you come close to sellin’ out, reconsider
Give the heavens above more than just a passing glance
And when you get the choice to sit it out or dance
I hope you dance. (Time….) I hope you dance
I hope you dance. (Tell me…) I hope you dance
Time is a wheel in constant motion, always
Rolling us along
Tell me, who
Wants to look back on their youth and wonder
Where those years have gone
Tell me, (Dance) who
Wants to look back on their youth and wonder
Where (Dance) those years have gone
Hi Everyone,
The mini field at Cruden Farm last month was absolutely fantastic. Moving [as always], the gardens and setting gorgeous, morning tea delicious and bountiful and the entertainment spellbinding. Our own Lee Murphy, accompanied on vocals by her friend Cheryl, and guitar by Tim brought a tear to many eyes with her very appropriately chosen songs, "I Hope You Choose Dance"; "Amazing Grace"; "You Build Me Up" and "It's a Beautiful World". The lyrics to "I Hope You Choose Dance" are attached below, they are so pertinent to us special ladies. Jo opened the morning, telling the approx 200 attending of her journey and her drive to support others who have breast cancer, as well as raise awareness. The mini field was down by the lake - surrounded by yellow water lilies. Several of our gals helped with the set up of the day and the sale of tickets and merchandise - which raised $2,000 for the Wig Library at PPH, and $2,000 for BCNA. It was a truly beautiful morning - the mood stayed with me all day.
We also had a very successful stall at the Mornington Food and Wine Fest on the 19th. We shared a trestle with the Peninsula Dragonflys under their very quick-to-erect gazebo outside the Grand Hotel, and set up selling some BCNA merchandise and offering Cancer Council pamphlets and info. We attached our pink silhouettes to the Dragon Boat, and also had them in the garden boxes outside the Grand. It really did look great. Many of the hearts we cut out at the last meeting were used for tributes, and all up we raised nearly $800 for BCNA. Thanks to Jo, Gina, Gayle, Ferne, Marilyn, Anne, Lee, Carolyn, Val, Janice and Helen. It was a bit of learning curve for next year - we need to streamline the Cancer Council info, and have more variety of merchandise. We also realised we need a banner, with a great design and slogan. We'll talk about it at the meeting this Wednesday - we're thinking of have a competition, the winner taking the last voucher for a massage at Peninsula Women's Health. We were so impressed with the Dragon Fly's easy-to-erect gazebo Jo bought one for the group from Janice at Anaconda.
NBOCC has launched two new websites:
www.nbocc.org.au/survivorship to assist breast cancer survivors and their families who are facing the challenges of "life after breast cancer".
www.cheekycheckup.com.au which encourages young women to check their breasts, what to look for, and techniques.
A Message from the Lovelocks
The Lovelocks thank you for your company, your beautiful cards, flowers, gifts and contribution to over $2,800 toward ovarian cancer research. Jo, Andrew, Sam, Tom & Katie
Coming UP:
Wednesday 5th November - Next meeting - 7.00 pm at The Bays
We'll chat for an hour or so over a cuppa, then Sally Rackham will come at about 8.15 to give us some pilates upper body exercises.
Sunday 9th November
Dragons Abreast Melbourne Spring Paddle & Picnic. Start time is 9.30 for paddlers, Flower Ceremony 11.30 am. They are paddling to Herring Island from VDBA Yarra compound to Herring Island, where they will hold the Flower Ceremony. You can drive to Herring Island and be shuttled across in the boat. BYO drinks and a plate to share. RSVP to dragonsabreastmelb@yahoo.com.au.
Wednesday 26th November at 6.30 pm
Opening night performance of "Australia" at Sorrento Cinema. Tickets $25, movie starts at 7.30 pm. Enjoy a glass of wine, finger food, wine tasting. Tea and coffee served after the movie. A fundraising event for Peninsula Dragonflys.
November 29th Annual Cancer Survivors Seminar - Free seminar lunch and refreshment provided
The Cancer Council - 100 Drummond Street, Carlton
10:00 - 3:00 pm
This seminar and is open to anyone who has had cancer, their partners, family and friends. Topics include: Understanding cancer related anxiety and depression; Changes in relationships and roles; Problem solving techniques; Money matters including superannuation. Registration essential, RSVP the Cancer helpline 13 11 20 by Monday 24th November.
December 3rd Breast Intentions end of year Christmas Dinner at The Grand in Mornington. 7.00 pm and Kris Cringle
December 5th Sexuality and Cancer - same time, place and info as November 29th session
Take care and see you soon,
Jann
I HOPE YOU DANCE
I hope you never lose your sense of wonder
You get your fill to eat but always keep that hunger
May you never take one single breath for granted
God forbid love ever leave you empty handed
I hope you still feel small
When you stand beside the ocean
Whenever one door closes I hope one more opens
Promise me that you’ll give faith a fighting chance
And when you get the choice to sit it out or dance
I hope you dance. (Dance) I hope you dance. (Dance)
I hope you never fear those mountains in the distance
Never settle for the path of least resistance
Livin’ might mean taking chances
But they’re worth takin’
Lovin’ might be a mistake but it’s worth makin’
Don’t let some hell bent heart leave you bitter
When you come close to sellin’ out, reconsider
Give the heavens above more than just a passing glance
And when you get the choice to sit it out or dance
I hope you dance. (Time….) I hope you dance
I hope you dance. (Tell me…) I hope you dance
Time is a wheel in constant motion, always
Rolling us along
Tell me, who
Wants to look back on their youth and wonder
Where those years have gone
Tell me, (Dance) who
Wants to look back on their youth and wonder
Where (Dance) those years have gone
Monday, October 20, 2008
OCTOBER NEWSLETTER
Hi Everyone,
Thanks Jo for doing such a fantastic job of the last newsletter. This month is full of activities to attend - as listed below.
We had a very relaxing and chatty meeting on the 1st, cutting out hearts and threading them on ribbon for messages on the silhouettes at the mini field on Friday 17th. We welcomed Barbara, and straight away set her to work, and we all thoroughly enjoyed birthday cake for Margaret's 40th and Jo's 50th.
Those of us who joined Jo for her 50th celebrations on Saturday the 4th had a lovely afternoon in the sun on the Lovelocks deck, drinking wine, eating fine food and enjoying the company of Jo's family and friends. Thanks to Jo and Andrew for sharing this milestone with us.
Jo, Helen, Lisa, Anne, Lucy and Judy Sammut amongst many others enjoyed listening to a pathologist and medical oncologist speak at the BCNA forum on Saturday regarding "Insights into Breast Cancer Pathology" and "Life after Breast Cancer". Here are Jo's notes:
The Pathologist was entertaining (for someone who is in a ‘dry’ profession). Our tissue samples are fixed in paraffin blocks, and stored in climate controlled rodent free premises for 20 years! He emphasised that if you do have a recurrence it is possible for them to retrieve your original specimen and take a look. Cancers can change their ‘personalities’ over time. He discussed the information that they looked for, which we all should know about. The ‘clear margins’ Type, Size and Grade of Tumour, Oestrogen, Progesterone and Her2 status. Also the Sentinel Node status or axillary clearance status. He also spoke about the future of Gene profiling, not in relation to Genetic cancers but to an individual’s Genotype. He reminded us that it is a labour intensive job with many steps along the way and much looking down a microscope. Not like a blood test where the sample is put into a machine and an answer pops out at the end!! The medical oncologist spoke again about pathology and the choices we have with treatment. Which options are available for specific cancers. He also touched on the future.
Stephanie Dowrick a psychotherapist, author and breast cancer survivor also spoke. “When we are no longer able to change a situation we are challenged to change ourselves” was one quote she used. Another was “Life itself is a precious thing and one can be hopeful about life itself”. She spoke about empowering ourselves and left us with some messages: We cannot afford to
- hold resentment from the past
- hold resentment about the present
- worry about petty matters or not know if they are petty
- think badly of ourselves
- add pain to our suffering by judging ourselves harshly
- blame other
- spend time with people who affect our body negatively (I like that one!)
- regret
- put off or postpone anything that matters to us
- come to terms with our own mortality it is the nature of physical existence to die
- not ask questions we need to ask
- understand the difference between molehills and mountains - we step over molehills and we climb mountains in small steps
- not deal with anger/depression
We need to show everyone we love them, live joyfully, laugh, discover our values and live to the full, do whatever brings us JOY JOY JOY, let some things slide and glide, find our spiritual center that gives meaning to our life and regard that place as home.
We purchased some of her books and they will be at the next meeting.
A not so low carb/sugar afternoon tea was enjoyed and some networking occurred. Old friends re-visited and new ones made.
Jo
Activities this Month
October 17th Friday 10-12am
A BCNA minified event held by all the Peninsula Support Groups. A morning tea, entertainment and fundraising for the Peninsula Wig Library. $5 entry cost to go directly to the Wig Library. Entertainment includes our own Lee Murphy, who will be singing during the morning.
To be held at Cruden Farm Frankston Cranbourne Rd.
Contact Jo or PPH Day Chemo Unit. This will be a very moving and delightful experience, especially in the beautiful Cruden Farm gardens.
October 19th Sunday 9am-3pm
A Breast Intentions/BCNA minifield and breast health awareness stall to be held at the Mornington Food and Wine Festival. We have a few volunteers to help on the day, but would appreciate more so if you're free.
8:30 Jann & Jo - set up
10:00 Ferne
11:00 Caroline, Lee
October 22nd Wednesday 10:00 - 3:00
Cancer Health Expo - Hastings Club 155 Marine Parade Hastings
Guest Speakers: Dr David Blakey - Radiation Oncologist
Edwina Beddoes - Cancer Council Victoria
Dawn Leicester - Breast Cancer Network Australia
Free light lunch, plus Hospice, Dragons Abreast, Prostate Support, Myeloma Foundation, Health Information and more.
RSVP Marg 5983 6044 or sjphillips@aapt.net.au
October 26th Sunday Pink Breakfast.
To be held at Cerberus fund to National Breast Cancer Research Fund. Cost $35 a head. Last year fabulous door prizes and good bags provided. Assume the same this year. Contact Helen Ainslie or Jo more info to follow...
October 27th Monday 12 noon
Hotel Sorrento Luncheon.
A pink buffet lunch and minifield this year. Tables don’t need to be booked as they have expanded the seating area although tickets still need to be pre purchased.
Costs $25 per head, silhouettes may be purchased. Funds to go to The McGrath Foundation and BCNA.
October 29th Wednesday 10:00 - 3:00 pm
Sexuality and Cancer - This is a free seminar - registration is essential - lunch included
The Cancer Council - 100 Drummond Street, Carlton
Cancer and its treatment often results in a loss of sexual confidence. Come along with your partner to learn ways of coping and enhancing your relationship in a safe, supportive environment.
This is facilitated by Dr Amanda Hordern, PhD, and Doreen Akkerman, AM. Many of us know Doreen from a sexuality session she held in Mornington and she is absolutely hilarious. RSVP The Cancer Council Helpline 13 11 20 or cis@cancervic.org.au
Coming Up
November 5th Breast Intentions meeting - The Bays at 7.00 pm
November 29th Annual Cancer Survivors Seminar - Free seminar lunch and refreshment provided
The Cancer Council - 100 Drummond Street, Carlton
10:00 - 3:00 pm
This seminar and is open to anyone who has had cancer, their partners, family and friends. Topics include: Understanding cancer related anxiety and depression; Changes in relationships and roles; Problem solving techniques; Money matters including superannuation. Registration essential, RSVP the Cancer helpline 13 11 20 by Monday 24th November.
December 3rd Breast Intentions end of year Christmas Dinner at The Grand in Mornington. 7.00 pm and Kris Cringle
December 5th Sexuality and Cancer - same time, place and info as November 29th session
Take care and see you soon,
Jann
Hi Everyone,
Thanks Jo for doing such a fantastic job of the last newsletter. This month is full of activities to attend - as listed below.
We had a very relaxing and chatty meeting on the 1st, cutting out hearts and threading them on ribbon for messages on the silhouettes at the mini field on Friday 17th. We welcomed Barbara, and straight away set her to work, and we all thoroughly enjoyed birthday cake for Margaret's 40th and Jo's 50th.
Those of us who joined Jo for her 50th celebrations on Saturday the 4th had a lovely afternoon in the sun on the Lovelocks deck, drinking wine, eating fine food and enjoying the company of Jo's family and friends. Thanks to Jo and Andrew for sharing this milestone with us.
Jo, Helen, Lisa, Anne, Lucy and Judy Sammut amongst many others enjoyed listening to a pathologist and medical oncologist speak at the BCNA forum on Saturday regarding "Insights into Breast Cancer Pathology" and "Life after Breast Cancer". Here are Jo's notes:
The Pathologist was entertaining (for someone who is in a ‘dry’ profession). Our tissue samples are fixed in paraffin blocks, and stored in climate controlled rodent free premises for 20 years! He emphasised that if you do have a recurrence it is possible for them to retrieve your original specimen and take a look. Cancers can change their ‘personalities’ over time. He discussed the information that they looked for, which we all should know about. The ‘clear margins’ Type, Size and Grade of Tumour, Oestrogen, Progesterone and Her2 status. Also the Sentinel Node status or axillary clearance status. He also spoke about the future of Gene profiling, not in relation to Genetic cancers but to an individual’s Genotype. He reminded us that it is a labour intensive job with many steps along the way and much looking down a microscope. Not like a blood test where the sample is put into a machine and an answer pops out at the end!! The medical oncologist spoke again about pathology and the choices we have with treatment. Which options are available for specific cancers. He also touched on the future.
Stephanie Dowrick a psychotherapist, author and breast cancer survivor also spoke. “When we are no longer able to change a situation we are challenged to change ourselves” was one quote she used. Another was “Life itself is a precious thing and one can be hopeful about life itself”. She spoke about empowering ourselves and left us with some messages: We cannot afford to
- hold resentment from the past
- hold resentment about the present
- worry about petty matters or not know if they are petty
- think badly of ourselves
- add pain to our suffering by judging ourselves harshly
- blame other
- spend time with people who affect our body negatively (I like that one!)
- regret
- put off or postpone anything that matters to us
- come to terms with our own mortality it is the nature of physical existence to die
- not ask questions we need to ask
- understand the difference between molehills and mountains - we step over molehills and we climb mountains in small steps
- not deal with anger/depression
We need to show everyone we love them, live joyfully, laugh, discover our values and live to the full, do whatever brings us JOY JOY JOY, let some things slide and glide, find our spiritual center that gives meaning to our life and regard that place as home.
We purchased some of her books and they will be at the next meeting.
A not so low carb/sugar afternoon tea was enjoyed and some networking occurred. Old friends re-visited and new ones made.
Jo
Activities this Month
October 17th Friday 10-12am
A BCNA minified event held by all the Peninsula Support Groups. A morning tea, entertainment and fundraising for the Peninsula Wig Library. $5 entry cost to go directly to the Wig Library. Entertainment includes our own Lee Murphy, who will be singing during the morning.
To be held at Cruden Farm Frankston Cranbourne Rd.
Contact Jo or PPH Day Chemo Unit. This will be a very moving and delightful experience, especially in the beautiful Cruden Farm gardens.
October 19th Sunday 9am-3pm
A Breast Intentions/BCNA minifield and breast health awareness stall to be held at the Mornington Food and Wine Festival. We have a few volunteers to help on the day, but would appreciate more so if you're free.
8:30 Jann & Jo - set up
10:00 Ferne
11:00 Caroline, Lee
October 22nd Wednesday 10:00 - 3:00
Cancer Health Expo - Hastings Club 155 Marine Parade Hastings
Guest Speakers: Dr David Blakey - Radiation Oncologist
Edwina Beddoes - Cancer Council Victoria
Dawn Leicester - Breast Cancer Network Australia
Free light lunch, plus Hospice, Dragons Abreast, Prostate Support, Myeloma Foundation, Health Information and more.
RSVP Marg 5983 6044 or sjphillips@aapt.net.au
October 26th Sunday Pink Breakfast.
To be held at Cerberus fund to National Breast Cancer Research Fund. Cost $35 a head. Last year fabulous door prizes and good bags provided. Assume the same this year. Contact Helen Ainslie or Jo more info to follow...
October 27th Monday 12 noon
Hotel Sorrento Luncheon.
A pink buffet lunch and minifield this year. Tables don’t need to be booked as they have expanded the seating area although tickets still need to be pre purchased.
Costs $25 per head, silhouettes may be purchased. Funds to go to The McGrath Foundation and BCNA.
October 29th Wednesday 10:00 - 3:00 pm
Sexuality and Cancer - This is a free seminar - registration is essential - lunch included
The Cancer Council - 100 Drummond Street, Carlton
Cancer and its treatment often results in a loss of sexual confidence. Come along with your partner to learn ways of coping and enhancing your relationship in a safe, supportive environment.
This is facilitated by Dr Amanda Hordern, PhD, and Doreen Akkerman, AM. Many of us know Doreen from a sexuality session she held in Mornington and she is absolutely hilarious. RSVP The Cancer Council Helpline 13 11 20 or cis@cancervic.org.au
Coming Up
November 5th Breast Intentions meeting - The Bays at 7.00 pm
November 29th Annual Cancer Survivors Seminar - Free seminar lunch and refreshment provided
The Cancer Council - 100 Drummond Street, Carlton
10:00 - 3:00 pm
This seminar and is open to anyone who has had cancer, their partners, family and friends. Topics include: Understanding cancer related anxiety and depression; Changes in relationships and roles; Problem solving techniques; Money matters including superannuation. Registration essential, RSVP the Cancer helpline 13 11 20 by Monday 24th November.
December 3rd Breast Intentions end of year Christmas Dinner at The Grand in Mornington. 7.00 pm and Kris Cringle
December 5th Sexuality and Cancer - same time, place and info as November 29th session
Take care and see you soon,
Jann
Thursday, September 11, 2008
SEPTEMBER NEWSLETTER
SEPTEMBER NEWSLETTER
Apologies to any of my addressees that I have added to this mailing list that shouldn’t have been, or deleted (you won’t know!!) any of you. Please let me know if I have had an oops. Jann is up in QLD and I have changed computers and had to type the addresses in I hope it works well.
We had a night in the boardroom, lovely table but not the same as upstairs last week. Judy Sammut spoke about exercise and breasts. I have included a shortened form of an article she had printed. Yes she has new breasts and looks fabulous. Many of us have met Judy breast less over the years. It is the 25th year of Encore and we would like to help Judy organize an afternoon tea in Nov in Frankston. Her next exercise group is in October and she would love to hear from you, if you are eligible. Ph: 98484650
We welcome Ruth Judy’s friend, Donna and Kerry who bravely visited from her hospital bed. Our thoughts are also with Gina, Elspeth and Val who are all having further treatment and/or surgery at the moment.
October is a very busy breast cancer month as you all know. I will go in date order and leave it up to you to decide what, where if any you would like to join in. I have just been listening to the ABC about breast cancer. I feel it will be everywhere for a while.
BCNA have changed the minifield format as they are struggling with the storage issues of sponsored silhouettes. They are working toward a Virtual Field and silhouettes can be sponsored on line. The silhouettes used for the minifields will be re used each year. This year is a crossover year and we felt that as long as we can remove the tributes we can still place them on our silhouettes on the day. The $20 can be forwarded to BCNA and a virtual women can be displayed permanently. We still need a solution to the tributes and we may keep them and display them each year. All thoughts gladly received on this.
October 5th Sunday 12.30-4.30pm
A fundraiser for Encore to help provide this fabulous service to you, women with breast cancer.
Cafe Milato. 707 Nicholson St Carlton.An afternoon of eats and treats with door prizes, raffles and auctions.Tickets $20 book early. Theresa 93874211 or Judy Sammut 98484650
October 17th Friday 10-12am
A BCNA minified event held by all the Peninsula Support Groups. A morning tea, entertainment and fundraising for the Peninsula Wig Library. $5 entry cost to go directly to the Wig Library.To be held at Cruden Farm Frankston Cranbourne Rd.Contact Jo or PPH Day Chemo Unit. Info to follow.
October 19th Sunday 9am-3pm
A Breast Intentions/BCNA minifield and breast health awareness stall to be held at the Mornington Food and Wine Festival. Helpers needed to man the stall and have fun!!
October 26th Sunday Pink Breakfast.
To be held at Cerberus fund to National Breast Cancer Research Fund. Cost $35 a head. Last year fabulous door prizes and good bags provided. Assume the same this year. Contact Helen Ainslie or Jo more info to follow...
October 27th Monday 12 noon Hotel Sorrento Luncheon.
A pink buffet lunch and minifield this year. Tables don’t need to be booked as they have expanded the seating area although tickets still need to be pre purchased.Costs $25 per head, silhouettes may be purchased. Funds to go to The McGrath Foundation and BCNA.
Boxes of BreastsBoxes of Breasts
Since my first breast cancer diagnosis and surgery 15 years ago boxes of breasts have been gathering in my wardrobe.
After several very intrusive surgeries, including a saline implant, followed by a rectus flap reconstruction, I lived for some years with a left reconstructed breast and a right unreconstructed side. I had been wearing an Amoena breast form when I discovered that they required ‘models’ for their fitter training sessions that they held in various Australian states. So at 54 years of age I became a ‘topless’ model.
Further ongoing surgeries with various bits being progressively removed meant that my chest went through a variety of appearances. The Amoena girls used these variations with enthusiasm as I presented a challenging chest for their trainee fitters to work on. Over this time I wore partial breast forms, fully weighted breast forms and even had a go with the two piece attachable system.
Five years ago I acquired my now undulating, map like breast less chest and sometimes wore light forms or swim forms.Clare and other staff had been pestering me to wear the new attachable breast form...no I insisted in fact I’m over breasts I’m going a la natural no more boobs for me.
I am a floor and pool exercise instructor and conduct at least 10 sessions per week, demonstrating cardio warm ups, stretching, free weights and aqua aerobics, standing noticeably breast less in front of around 150 women (and men) per week. Most participants are aware that I’ve had breast cancer and have become accustomed to my breast free look.
Clare persisted........and at a training session one was fitted on me and I commented on how beautifully natural and light it felt. Clare insisted that I test drive two for her. I hadn’t as I thought they wouldn’t sit comfortably on my messy chest and with all the stretching, twisting, lifting and arm waving...... my reluctant response was alright just to shut her up!!
So I attached the forma with a new bra. They felt a little strange but comfortable, no weight on my shoulders stretching and arm waving didn’t appear to be restricted. I then popped on a neat fitting t-shirt looked in the mirror- and oh, there I was- looking good- really good- fantastic really. With breast –up lifted- I felt uplifted- my midriff minimized- my body balanced- my posture prouder. I think I nearly cried- I’d forgotten how wonderful it was to look and feel so feminie. I loved how it felt to have breasts again. My expressions of delight and amazement were equal to Clare’s look of achievement and purring satisfaction.A friends’ forty year old son commented: That’s a neat trick How did you do it? Do what I asked? Grow breasts overnight! He replied.
One night I came home late and tired.. took off my bra, fell into bed then realized I’d not taken off my breasts. They felt so much a part of me... like my natural breasts had been over 15 years ago. So here I am now 68 curvaceous and gorgeous- well I feel that way anyway- and no need for my boxed breast collection. Thanks Clare for your tenacity. Judy Sammut
invitation
The National Breast Cancer Foundation, National Breast and Ovarian Cancer Centre and Breast Cancer Network Australia invite you and your family to a Memorial Service to be held at St. Michael’s Uniting Church 120 Collins Street Melbourne on Sunday 5 October 2008 at 2.30pm
Followed by light refreshments in St. Michael’s Hall RSVP by Monday 29 September 2008
1800 500 258 beacon@bcna.org.au
I also forgot to mention our fabulous new book and Cd collection many of which are out already. There are a couple more for the October 1st night. Cheers Jo
Dear All
This is why they don’t let me do the newsletter very often!!
Hastings Cancer Support Group are running a forum on October 22nd 10-3pm at The Hastings club 155 Marine Parade. !0am registration & morning tea. Guest Speakers are David Blakey Radio Oncologist, Edwina Beddoes Cancer Council Vic and Dawn Leicester BCNA Free light lunch plus hospice, Dragons Abreast, Prostate support, myeloma foundation , health information and more. RSVP Marg 59836044 0r sjphillips@aapt.net.au
I have also included a media release from BCNA that came after I sent out the newsletter... stay tuned Cheers Jo
MEDIA RELEASE Tuesday 9th September, 2008 Attention: News
NATIONAL CONSISTENCY IN BREAST PROSTHESIS PROGRAM WELCOMED BY SURVIVORS
Breast Cancer Network Australia (BCNA) today welcomed the Government’s announcement that the Medicare system will reimburse women for new and replacement breast prostheses.
“There has been a lot of inequality across Australia and it is wonderful that we are finally going to see all women being able to access the same financial support for prostheses,” BCNA Policy Manager Michelle Marven said.
BCNA has been advocating for a streamlined, national approach for ten years.“Using the Medicare system for the rebate will mean that most women will be able to receive a quick and straightforward refund through their local Medicare office.” The system will come into effect in December this year, although women will be able to claim the reimbursement for purchases made from July 1, 2008. However, BCNA encourages women to ensure that they understand the system before purchasing prostheses under the new scheme. Ms Marven highlights that women should be aware that: The Medicare levy will only reimburse $400 of the total cost of a prosthesis. Money will be reimbursed to women through an electronic transfer of funds to their bank account. The system will include new and replacement prostheses – replacements canbe purchased every 2 years. If the prosthesis is purchased before December, women need to keep a copy of their receipt and apply for the refund after December 1, 2008.
Breast cancer survivor and BCNA Community Liaison Kay Ellis was with Minister Roxon when she made the announcement today. Kay said “This will mean a lot to women across Australia. I know it would have made a difference to my mum. She was diagnosed 40 years ago and her doctor gave her a rice bag as her prosthesis. How things have changed.”
BCNA can provide breast cancer survivors, who will be affected by this decision,for interview and comment.Policy Manager, Michelle Marven is also available for comment.For more information and to arrange interviews contact: Jaki Colgan – Media Coordinator Phone: 0409 238 944 or email: jcolgan@bcna.org.au More detail on the program can be found at www.medicareaustralia.gov.au/public/services/breast-prostheses.jsp or www.health.gov.auSince my first breast cancer diagnosis and surgery 15 years ago boxes of breasts have been gathering in my wardrobe.
After several very intrusive surgeries, including a saline implant, followed by a rectus flap reconstruction, I lived for some years with a left reconstructed breast and a right unreconstructed side. I had been wearing an Amoena breast form when I discovered that they required ‘models’ for their fitter training sessions that they held in various Australian states. So at 54 years of age I became a ‘topless’ model.
Further ongoing surgeries with various bits being progressively removed meant that my chest went through a variety of appearances. The Amoena girls used these variations with enthusiasm as I presented a challenging chest for their trainee fitters to work on. Over this time I wore partial breast forms, fully weighted breast forms and even had a go with the two piece attachable system.
Five years ago I acquired my now undulating, map like breast less chest and sometimes wore light forms or swim forms.
Clare and other staff had been pestering me to wear the new attachable breast form...no I insisted in fact I’m over breasts I’m going a la natural no more boobs for me.
I am a floor and pool exercise instructor and conduct at least 10 sessions per week, demonstrating cardio warm ups, stretching, free weights and aqua aerobics, standing noticeably breast less in front of around 150 women (and men) per week. Most participants are aware that I’ve had breast cancer and have become accustomed to my breast free look.
Clare persisted........and at a training session one was fitted on me and I commented on how beautifully natural and light it felt. Clare insisted that I test drive two for her. I hadn’t as I thought they wouldn’t sit comfortably on my messy chest and with all the stretching, twisting, lifting and arm waving...... my reluctant response was alright just to shut her up!!
So I attached the forma with a new bra. They felt a little strange but comfortable, no weight on my shoulders stretching and arm waving didn’t appear to be restricted. I then popped on a neat fitting t-shirt looked in the mirror- and oh, there I was- looking good- really good- fantastic really. With breast –up lifted- I felt uplifted- my midriff minimized- my body balanced- my posture prouder. I think I nearly cried- I’d forgotten how wonderful it was to look and feel so feminie. I loved how it felt to have breasts again. My expressions of delight and amazement were equal to Clare’s look of achievement and purring satisfaction.
A friends’ forty year old son commented: That’s a neat trick How did you do it? Do what I asked? Grow breasts overnight! He replied.
One night I came home late and tired.. took off my bra, fell into bed then realized I’d not taken off my breasts. They felt so much a part of me... like my natural breasts had been over 15 years ago. So here I am now 68 curvaceous and gorgeous- well I feel that way anyway- and no need for my boxed breast collection. Thanks Clare for your tenacity.
Judy Sammut
Since my first breast cancer diagnosis and surgery 15 years ago boxes of breasts have been gathering in my wardrobe.
After several very intrusive surgeries, including a saline implant, followed by a rectus flap reconstruction, I lived for some years with a left reconstructed breast and a right unreconstructed side. I had been wearing an Amoena breast form when I discovered that they required ‘models’ for their fitter training sessions that they held in various Australian states. So at 54 years of age I became a ‘topless’ model.
Further ongoing surgeries with various bits being progressively removed meant that my chest went through a variety of appearances. The Amoena girls used these variations with enthusiasm as I presented a challenging chest for their trainee fitters to work on. Over this time I wore partial breast forms, fully weighted breast forms and even had a go with the two piece attachable system.
Five years ago I acquired my now undulating, map like breast less chest and sometimes wore light forms or swim forms.
Clare and other staff had been pestering me to wear the new attachable breast form...no I insisted in fact I’m over breasts I’m going a la natural no more boobs for me.
I am a floor and pool exercise instructor and conduct at least 10 sessions per week, demonstrating cardio warm ups, stretching, free weights and aqua aerobics, standing noticeably breast less in front of around 150 women (and men) per week. Most participants are aware that I’ve had breast cancer and have become accustomed to my breast free look.
Clare persisted........and at a training session one was fitted on me and I commented on how beautifully natural and light it felt. Clare insisted that I test drive two for her. I hadn’t as I thought they wouldn’t sit comfortably on my messy chest and with all the stretching, twisting, lifting and arm waving...... my reluctant response was alright just to shut her up!!
So I attached the forma with a new bra. They felt a little strange but comfortable, no weight on my shoulders stretching and arm waving didn’t appear to be restricted. I then popped on a neat fitting t-shirt looked in the mirror- and oh, there I was- looking good- really good- fantastic really. With breast –up lifted- I felt uplifted- my midriff minimized- my body balanced- my posture prouder. I think I nearly cried- I’d forgotten how wonderful it was to look and feel so feminie. I loved how it felt to have breasts again. My expressions of delight and amazement were equal to Clare’s look of achievement and purring satisfaction.
A friends’ forty year old son commented: That’s a neat trick How did you do it? Do what I asked? Grow breasts overnight! He replied.
One night I came home late and tired.. took off my bra, fell into bed then realized I’d not taken off my breasts. They felt so much a part of me... like my natural breasts had been over 15 years ago. So here I am now 68 curvaceous and gorgeous- well I feel that way anyway- and no need for my boxed breast collection. Thanks Clare for your tenacity.
Judy Sammut
Apologies to any of my addressees that I have added to this mailing list that shouldn’t have been, or deleted (you won’t know!!) any of you. Please let me know if I have had an oops. Jann is up in QLD and I have changed computers and had to type the addresses in I hope it works well.
We had a night in the boardroom, lovely table but not the same as upstairs last week. Judy Sammut spoke about exercise and breasts. I have included a shortened form of an article she had printed. Yes she has new breasts and looks fabulous. Many of us have met Judy breast less over the years. It is the 25th year of Encore and we would like to help Judy organize an afternoon tea in Nov in Frankston. Her next exercise group is in October and she would love to hear from you, if you are eligible. Ph: 98484650
We welcome Ruth Judy’s friend, Donna and Kerry who bravely visited from her hospital bed. Our thoughts are also with Gina, Elspeth and Val who are all having further treatment and/or surgery at the moment.
October is a very busy breast cancer month as you all know. I will go in date order and leave it up to you to decide what, where if any you would like to join in. I have just been listening to the ABC about breast cancer. I feel it will be everywhere for a while.
BCNA have changed the minifield format as they are struggling with the storage issues of sponsored silhouettes. They are working toward a Virtual Field and silhouettes can be sponsored on line. The silhouettes used for the minifields will be re used each year. This year is a crossover year and we felt that as long as we can remove the tributes we can still place them on our silhouettes on the day. The $20 can be forwarded to BCNA and a virtual women can be displayed permanently. We still need a solution to the tributes and we may keep them and display them each year. All thoughts gladly received on this.
October 5th Sunday 12.30-4.30pm
A fundraiser for Encore to help provide this fabulous service to you, women with breast cancer.
Cafe Milato. 707 Nicholson St Carlton.An afternoon of eats and treats with door prizes, raffles and auctions.Tickets $20 book early. Theresa 93874211 or Judy Sammut 98484650
October 17th Friday 10-12am
A BCNA minified event held by all the Peninsula Support Groups. A morning tea, entertainment and fundraising for the Peninsula Wig Library. $5 entry cost to go directly to the Wig Library.To be held at Cruden Farm Frankston Cranbourne Rd.Contact Jo or PPH Day Chemo Unit. Info to follow.
October 19th Sunday 9am-3pm
A Breast Intentions/BCNA minifield and breast health awareness stall to be held at the Mornington Food and Wine Festival. Helpers needed to man the stall and have fun!!
October 26th Sunday Pink Breakfast.
To be held at Cerberus fund to National Breast Cancer Research Fund. Cost $35 a head. Last year fabulous door prizes and good bags provided. Assume the same this year. Contact Helen Ainslie or Jo more info to follow...
October 27th Monday 12 noon Hotel Sorrento Luncheon.
A pink buffet lunch and minifield this year. Tables don’t need to be booked as they have expanded the seating area although tickets still need to be pre purchased.Costs $25 per head, silhouettes may be purchased. Funds to go to The McGrath Foundation and BCNA.
Boxes of BreastsBoxes of Breasts
Since my first breast cancer diagnosis and surgery 15 years ago boxes of breasts have been gathering in my wardrobe.
After several very intrusive surgeries, including a saline implant, followed by a rectus flap reconstruction, I lived for some years with a left reconstructed breast and a right unreconstructed side. I had been wearing an Amoena breast form when I discovered that they required ‘models’ for their fitter training sessions that they held in various Australian states. So at 54 years of age I became a ‘topless’ model.
Further ongoing surgeries with various bits being progressively removed meant that my chest went through a variety of appearances. The Amoena girls used these variations with enthusiasm as I presented a challenging chest for their trainee fitters to work on. Over this time I wore partial breast forms, fully weighted breast forms and even had a go with the two piece attachable system.
Five years ago I acquired my now undulating, map like breast less chest and sometimes wore light forms or swim forms.Clare and other staff had been pestering me to wear the new attachable breast form...no I insisted in fact I’m over breasts I’m going a la natural no more boobs for me.
I am a floor and pool exercise instructor and conduct at least 10 sessions per week, demonstrating cardio warm ups, stretching, free weights and aqua aerobics, standing noticeably breast less in front of around 150 women (and men) per week. Most participants are aware that I’ve had breast cancer and have become accustomed to my breast free look.
Clare persisted........and at a training session one was fitted on me and I commented on how beautifully natural and light it felt. Clare insisted that I test drive two for her. I hadn’t as I thought they wouldn’t sit comfortably on my messy chest and with all the stretching, twisting, lifting and arm waving...... my reluctant response was alright just to shut her up!!
So I attached the forma with a new bra. They felt a little strange but comfortable, no weight on my shoulders stretching and arm waving didn’t appear to be restricted. I then popped on a neat fitting t-shirt looked in the mirror- and oh, there I was- looking good- really good- fantastic really. With breast –up lifted- I felt uplifted- my midriff minimized- my body balanced- my posture prouder. I think I nearly cried- I’d forgotten how wonderful it was to look and feel so feminie. I loved how it felt to have breasts again. My expressions of delight and amazement were equal to Clare’s look of achievement and purring satisfaction.A friends’ forty year old son commented: That’s a neat trick How did you do it? Do what I asked? Grow breasts overnight! He replied.
One night I came home late and tired.. took off my bra, fell into bed then realized I’d not taken off my breasts. They felt so much a part of me... like my natural breasts had been over 15 years ago. So here I am now 68 curvaceous and gorgeous- well I feel that way anyway- and no need for my boxed breast collection. Thanks Clare for your tenacity. Judy Sammut
invitation
The National Breast Cancer Foundation, National Breast and Ovarian Cancer Centre and Breast Cancer Network Australia invite you and your family to a Memorial Service to be held at St. Michael’s Uniting Church 120 Collins Street Melbourne on Sunday 5 October 2008 at 2.30pm
Followed by light refreshments in St. Michael’s Hall RSVP by Monday 29 September 2008
1800 500 258 beacon@bcna.org.au
I also forgot to mention our fabulous new book and Cd collection many of which are out already. There are a couple more for the October 1st night. Cheers Jo
Dear All
This is why they don’t let me do the newsletter very often!!
Hastings Cancer Support Group are running a forum on October 22nd 10-3pm at The Hastings club 155 Marine Parade. !0am registration & morning tea. Guest Speakers are David Blakey Radio Oncologist, Edwina Beddoes Cancer Council Vic and Dawn Leicester BCNA Free light lunch plus hospice, Dragons Abreast, Prostate support, myeloma foundation , health information and more. RSVP Marg 59836044 0r sjphillips@aapt.net.au
I have also included a media release from BCNA that came after I sent out the newsletter... stay tuned Cheers Jo
MEDIA RELEASE Tuesday 9th September, 2008 Attention: News
NATIONAL CONSISTENCY IN BREAST PROSTHESIS PROGRAM WELCOMED BY SURVIVORS
Breast Cancer Network Australia (BCNA) today welcomed the Government’s announcement that the Medicare system will reimburse women for new and replacement breast prostheses.
“There has been a lot of inequality across Australia and it is wonderful that we are finally going to see all women being able to access the same financial support for prostheses,” BCNA Policy Manager Michelle Marven said.
BCNA has been advocating for a streamlined, national approach for ten years.“Using the Medicare system for the rebate will mean that most women will be able to receive a quick and straightforward refund through their local Medicare office.” The system will come into effect in December this year, although women will be able to claim the reimbursement for purchases made from July 1, 2008. However, BCNA encourages women to ensure that they understand the system before purchasing prostheses under the new scheme. Ms Marven highlights that women should be aware that: The Medicare levy will only reimburse $400 of the total cost of a prosthesis. Money will be reimbursed to women through an electronic transfer of funds to their bank account. The system will include new and replacement prostheses – replacements canbe purchased every 2 years. If the prosthesis is purchased before December, women need to keep a copy of their receipt and apply for the refund after December 1, 2008.
Breast cancer survivor and BCNA Community Liaison Kay Ellis was with Minister Roxon when she made the announcement today. Kay said “This will mean a lot to women across Australia. I know it would have made a difference to my mum. She was diagnosed 40 years ago and her doctor gave her a rice bag as her prosthesis. How things have changed.”
BCNA can provide breast cancer survivors, who will be affected by this decision,for interview and comment.Policy Manager, Michelle Marven is also available for comment.For more information and to arrange interviews contact: Jaki Colgan – Media Coordinator Phone: 0409 238 944 or email: jcolgan@bcna.org.au More detail on the program can be found at www.medicareaustralia.gov.au/public/services/breast-prostheses.jsp or www.health.gov.auSince my first breast cancer diagnosis and surgery 15 years ago boxes of breasts have been gathering in my wardrobe.
After several very intrusive surgeries, including a saline implant, followed by a rectus flap reconstruction, I lived for some years with a left reconstructed breast and a right unreconstructed side. I had been wearing an Amoena breast form when I discovered that they required ‘models’ for their fitter training sessions that they held in various Australian states. So at 54 years of age I became a ‘topless’ model.
Further ongoing surgeries with various bits being progressively removed meant that my chest went through a variety of appearances. The Amoena girls used these variations with enthusiasm as I presented a challenging chest for their trainee fitters to work on. Over this time I wore partial breast forms, fully weighted breast forms and even had a go with the two piece attachable system.
Five years ago I acquired my now undulating, map like breast less chest and sometimes wore light forms or swim forms.
Clare and other staff had been pestering me to wear the new attachable breast form...no I insisted in fact I’m over breasts I’m going a la natural no more boobs for me.
I am a floor and pool exercise instructor and conduct at least 10 sessions per week, demonstrating cardio warm ups, stretching, free weights and aqua aerobics, standing noticeably breast less in front of around 150 women (and men) per week. Most participants are aware that I’ve had breast cancer and have become accustomed to my breast free look.
Clare persisted........and at a training session one was fitted on me and I commented on how beautifully natural and light it felt. Clare insisted that I test drive two for her. I hadn’t as I thought they wouldn’t sit comfortably on my messy chest and with all the stretching, twisting, lifting and arm waving...... my reluctant response was alright just to shut her up!!
So I attached the forma with a new bra. They felt a little strange but comfortable, no weight on my shoulders stretching and arm waving didn’t appear to be restricted. I then popped on a neat fitting t-shirt looked in the mirror- and oh, there I was- looking good- really good- fantastic really. With breast –up lifted- I felt uplifted- my midriff minimized- my body balanced- my posture prouder. I think I nearly cried- I’d forgotten how wonderful it was to look and feel so feminie. I loved how it felt to have breasts again. My expressions of delight and amazement were equal to Clare’s look of achievement and purring satisfaction.
A friends’ forty year old son commented: That’s a neat trick How did you do it? Do what I asked? Grow breasts overnight! He replied.
One night I came home late and tired.. took off my bra, fell into bed then realized I’d not taken off my breasts. They felt so much a part of me... like my natural breasts had been over 15 years ago. So here I am now 68 curvaceous and gorgeous- well I feel that way anyway- and no need for my boxed breast collection. Thanks Clare for your tenacity.
Judy Sammut
Since my first breast cancer diagnosis and surgery 15 years ago boxes of breasts have been gathering in my wardrobe.
After several very intrusive surgeries, including a saline implant, followed by a rectus flap reconstruction, I lived for some years with a left reconstructed breast and a right unreconstructed side. I had been wearing an Amoena breast form when I discovered that they required ‘models’ for their fitter training sessions that they held in various Australian states. So at 54 years of age I became a ‘topless’ model.
Further ongoing surgeries with various bits being progressively removed meant that my chest went through a variety of appearances. The Amoena girls used these variations with enthusiasm as I presented a challenging chest for their trainee fitters to work on. Over this time I wore partial breast forms, fully weighted breast forms and even had a go with the two piece attachable system.
Five years ago I acquired my now undulating, map like breast less chest and sometimes wore light forms or swim forms.
Clare and other staff had been pestering me to wear the new attachable breast form...no I insisted in fact I’m over breasts I’m going a la natural no more boobs for me.
I am a floor and pool exercise instructor and conduct at least 10 sessions per week, demonstrating cardio warm ups, stretching, free weights and aqua aerobics, standing noticeably breast less in front of around 150 women (and men) per week. Most participants are aware that I’ve had breast cancer and have become accustomed to my breast free look.
Clare persisted........and at a training session one was fitted on me and I commented on how beautifully natural and light it felt. Clare insisted that I test drive two for her. I hadn’t as I thought they wouldn’t sit comfortably on my messy chest and with all the stretching, twisting, lifting and arm waving...... my reluctant response was alright just to shut her up!!
So I attached the forma with a new bra. They felt a little strange but comfortable, no weight on my shoulders stretching and arm waving didn’t appear to be restricted. I then popped on a neat fitting t-shirt looked in the mirror- and oh, there I was- looking good- really good- fantastic really. With breast –up lifted- I felt uplifted- my midriff minimized- my body balanced- my posture prouder. I think I nearly cried- I’d forgotten how wonderful it was to look and feel so feminie. I loved how it felt to have breasts again. My expressions of delight and amazement were equal to Clare’s look of achievement and purring satisfaction.
A friends’ forty year old son commented: That’s a neat trick How did you do it? Do what I asked? Grow breasts overnight! He replied.
One night I came home late and tired.. took off my bra, fell into bed then realized I’d not taken off my breasts. They felt so much a part of me... like my natural breasts had been over 15 years ago. So here I am now 68 curvaceous and gorgeous- well I feel that way anyway- and no need for my boxed breast collection. Thanks Clare for your tenacity.
Judy Sammut
Saturday, August 09, 2008
APRIL NEWSLETTER
APRIL 2008 NEWSLETTER
Hi Ladies,
What a shocking night of wild storms for our last meeting! Eight of us braved the weather, and had a quiet round-table chat, the main topic of which was additional supplements and treatments. If you are taking any supplements that you find beneficial, please let me know details and I’ll make a list for us to share. There’s probably quite a lot of supplements available that we could all benefit from.
BCNA Update
The Pink Bun Campaign: Bakers Delight stores are running a breast cancer awareness campaign an want women who have experiences breast cancer in their local area to be involved. Pop into your local store if you would like to help out.
The Mothers Day Classic – Sunday 11th May: This is a family day held at The Tan in Melbourne, with a run/jog/walk/stroll around The Tan, then make a day of it with a picnic lunch. Commences at 6.45am [oh god] registration, 7.30am warm up 7.45am 4 kl walk starts, 8.20 am 8 kl walk starts, all presentations completed by 12.00. More information at mothersdayclassic.org. On line registrations close 7th May, but you can enter on the day.
Cancer Council
The Cancer Council is holding a FREE Inaugural Carer’s Form – for family and friends caring for someone with cancer and carers who have cancer. Saturday 10th May, 10.00 am – 3.00 pm at 100 Drummond Street, Carlton. Lunch included. Topics include:
- When It Happened to Me! By Doreen Akkerman AM, Director, Cancer Information and Support Services
- What happens when the carer has cancer?
- Connecting with Family Carers
- Carer information and support services.
The forum will also provide carer and cancer specific information and resources on a range of support services such as Carers Victoria and the Cancer Connect program. Places are limited – register by 7 May on 131120 or cis@cancervic.org.au
Dragon Flys
There are now two dragons abreast clubs on the Peninsula – Patterson Lakes Dragon Flys, and Mt Martha Cove Dragon Flys, and we have some of our members in each.
Change of Details
Several member emails are bouncing back, so if you change your email please let me know. I’ll contact the current people individually.
Library
There are several books that have been out for quite a while, so if you have any and are finished with then, please remember to return them.
Next Meeting
The next meeting is this Wednesday 7th May, 7.00 pm at the Bays. Jan Winslade and her lovely helpers from Yoga by the Bay are coming to give us relaxation and reiki. See you there.
Take care,
Jann
Hi Ladies,
What a shocking night of wild storms for our last meeting! Eight of us braved the weather, and had a quiet round-table chat, the main topic of which was additional supplements and treatments. If you are taking any supplements that you find beneficial, please let me know details and I’ll make a list for us to share. There’s probably quite a lot of supplements available that we could all benefit from.
BCNA Update
The Pink Bun Campaign: Bakers Delight stores are running a breast cancer awareness campaign an want women who have experiences breast cancer in their local area to be involved. Pop into your local store if you would like to help out.
The Mothers Day Classic – Sunday 11th May: This is a family day held at The Tan in Melbourne, with a run/jog/walk/stroll around The Tan, then make a day of it with a picnic lunch. Commences at 6.45am [oh god] registration, 7.30am warm up 7.45am 4 kl walk starts, 8.20 am 8 kl walk starts, all presentations completed by 12.00. More information at mothersdayclassic.org. On line registrations close 7th May, but you can enter on the day.
Cancer Council
The Cancer Council is holding a FREE Inaugural Carer’s Form – for family and friends caring for someone with cancer and carers who have cancer. Saturday 10th May, 10.00 am – 3.00 pm at 100 Drummond Street, Carlton. Lunch included. Topics include:
- When It Happened to Me! By Doreen Akkerman AM, Director, Cancer Information and Support Services
- What happens when the carer has cancer?
- Connecting with Family Carers
- Carer information and support services.
The forum will also provide carer and cancer specific information and resources on a range of support services such as Carers Victoria and the Cancer Connect program. Places are limited – register by 7 May on 131120 or cis@cancervic.org.au
Dragon Flys
There are now two dragons abreast clubs on the Peninsula – Patterson Lakes Dragon Flys, and Mt Martha Cove Dragon Flys, and we have some of our members in each.
Change of Details
Several member emails are bouncing back, so if you change your email please let me know. I’ll contact the current people individually.
Library
There are several books that have been out for quite a while, so if you have any and are finished with then, please remember to return them.
Next Meeting
The next meeting is this Wednesday 7th May, 7.00 pm at the Bays. Jan Winslade and her lovely helpers from Yoga by the Bay are coming to give us relaxation and reiki. See you there.
Take care,
Jann
Sunday, January 27, 2008
Thursday, December 06, 2007
PENINSULA DRAGONFLYS
PENINSULA DRAGONFLYS OUR LOCAL DRAGON ABREAST PADDLERS AT SORRENTO PINK LUNCH OCT 2007
LISA
It is with deep sadness we advise the passing this morning of our beautiful friend and member - Lisa. Lisa was a founding member of the Group, and has battled breast cancer bravely since 2003.
Lisa, 43, leaves behind her husband Frank, and cherished son Mitchell, 7.
Lisa was a beautifully giving person - you will remember her at our August meeting, passing on her encouragement for those living with secondary breast cancer to obtain further information through the Hopes & Hurdles kit.
Our memories of Lisa are of a special brave lady, full of compassion, generousity, high intellect, fun and love.
As she treads her peaceful new path, we're sure her spirit will bloom, magnifying all these qualities, never far from Frank, Mitchell and her loved ones.
Jo and Jann
Lisa, 43, leaves behind her husband Frank, and cherished son Mitchell, 7.
Lisa was a beautifully giving person - you will remember her at our August meeting, passing on her encouragement for those living with secondary breast cancer to obtain further information through the Hopes & Hurdles kit.
Our memories of Lisa are of a special brave lady, full of compassion, generousity, high intellect, fun and love.
As she treads her peaceful new path, we're sure her spirit will bloom, magnifying all these qualities, never far from Frank, Mitchell and her loved ones.
Jo and Jann
OCTOBER NEWSLETTER
OCTOBER 2007 NEWSLETTER
Hi Everyone,
Well, Breast Cancer month has come and gone, and it was quite busy !!!
- Along with several from our group, and many others, I attended the Mini Field at McClelland Gallery and it was lovely. Not a great word to describe an event, but it was lovely. Virginia from Peninsula Private Oncology unit organised the day and the format. The session was moving, the morning tea yummy, and the setting gorgeous.
- The Pink Ribbon Breakfast at Hastings on 28th October was apparently fantastic, with our brave Helen Ainslie sharing her journey with around 200 people. A great effort considering the emotion attached, and well worth it with several women coming up to her and asking if they should check this or that. She now has comments on her impressive speech from the shopkeepers of Hastings!. The local business community kicked in with great give away bags - which included a DVD of how to check your breast for lumps, along with other wonderful goodies. Well done Helen.
- The weather on 28th October was also fantastic for the picnic in Mornington Park. Jenny and the other Dragons selling their wares to raise funds, and a great family day.
Jo attended the first National Conference for young women with breast cancer – Up Close and Personal, which took place in Melbourne October this year. This was the first time that young women from around Australia had the opportunity to come together to a Conference designed specifically around the issues affecting them. This was a Conference organised by young women for young women.
The Conference aims were to inform; connect; and advocate. These aims were successfully delivered through the wide range of quality speakers who presented during the plenary and workshop sessions.
Recommendations that were put forward during these sessions included:
Better communication and awareness from GPs in diagnosing younger women is needed. Women should not be dismissed when presenting with symptoms simply because of their younger age.
Although information dissemination has improved there still appears to be discrepancy in information that is provided to young woman. It was recommended that all young women (pre-menopausal) should be informed about fertility options before treatment.
Financial guidelines and assistance:
Free mammograms and ultra sounds
Better financial support
Improving resources:
Links to specialists
Information for women with children
Accessing support groups
Support groups for partners; carers
Breast Care Nurses for all women
Advanced Young Women’s Group
Peer support program that helps connect women
Develop medical databases
Increasing awareness around young women’s issues
Transcripts, presentations and photos from the Conference will be made available on www.yabc2007conference.org late November.
Peninsula Dragon Fly's
Our members of Peninsula Dragon Fly's have returned from Caloundra, where they had a wonderful connection with women from all over the world, also
Your Stories
We have received an email from Jennifer Kerr who wants to know any stories of women suffering from breast cancer who are our of pocket in regards to expenses for treatment or loss of wages to do treatment or loss of wages to recover from treatments or even expense just to access treatments. She is campaigning to help these women help of a major publishing organisation in Australia. Her contact details are PO Box 419, Dromana, 3936Mobile: 0418 965753 PH: 03 59873716 email: kerrclan02@bigpond.com and her story is at
http://aww.ninemsn.com.au/section.aspx?sectionid=6002§ionname=pinkribbon
Writers' Group
The Writers Group started at Peninsula Private Hospital in the Chemo Room on Wed 31st October at 2.00pm. Sorry I'm late with this one, but call Gail on 97088034 if you are interested in joining.
Being Vigilant
After the positive feedback received re comments from Jo in the last Newsletter re secondaries, Jo advises the following:
What 'follow up' do we have/ need. Remember that different types of cancer diagnosis will require different follow up. Some doctors will do a baseline of CT and Bone Scans at diagnosis, some will not. Some doctors will continue to do scans at regular intervals some only at certain stages or when a symptom warrants it. Blood tests for tumour markers is only appropriate for women who at the time of diagnosis had an elevated marker, many women do not.
The best advice is to be alert but not alarmed and to be 'breast aware' as you know your body better than anyone and see it more regularly. But don't be afraid to get something unusual checked out. We all need to take care of ourselves. Cheers Jo
Regular follow-up is essential after treatment for early breast cancer.
After your treatment you should have regular appointments with your GP, surgeon, radiation oncologist or medical oncologist. Regular follow-up makes sure that if breast cancer comes back in the breast, breast tissue, or the other breast, it is promptly treated. Regular follow-up also allows your doctor to check for, and manage, any side effects from treatment that might develop after you have finished treatment. Speak to your doctor about your follow-up schedule.
Appropriate follow-up involves regular examinations and mammograms. It does not involve chest X-rays, bone scans or blood tests unless there is a problem that shows they are needed.
See your GP or specialist as soon as possible if you:
• feel a lump in either breast, or in the breast tissue left on your chest after mastectomy
• have any other symptoms in either breast, such as nipple discharge
• develop any other symptoms that concern you.
Do not wait until your regular appointment if you notice any new or unusual changes.
If you change doctors at any time, ask your new doctor to request your medical records from your previous doctor.
NBCC Information for women with Early Breast Cancer.
Cancer Council Victoria – Free Seminar for people living with advanced cancer:
“When cancer won’t go away”
Saturday 1 December, 10.30-2.30pm
Partners, family and Friends are encouraged to attend.
RSVP: PH: 13 11 20 or email cis@cancervic.org.au
Coming Up:
Nov 7th Annie Carter - with bras and bathers for us special gals
Dec 5th Christmas Dinner at the Grand Hotel - bring a Kris Kringle to the value of $10 [I'll book for 20 so just turn up on the night]
I won't be at the next meeting, I'll be sunning myself in Cairns while catching up with my daughter Jane, so in the meantime, stay healthy and take care.
Jann
Hi Everyone,
Well, Breast Cancer month has come and gone, and it was quite busy !!!
- Along with several from our group, and many others, I attended the Mini Field at McClelland Gallery and it was lovely. Not a great word to describe an event, but it was lovely. Virginia from Peninsula Private Oncology unit organised the day and the format. The session was moving, the morning tea yummy, and the setting gorgeous.
- The Pink Ribbon Breakfast at Hastings on 28th October was apparently fantastic, with our brave Helen Ainslie sharing her journey with around 200 people. A great effort considering the emotion attached, and well worth it with several women coming up to her and asking if they should check this or that. She now has comments on her impressive speech from the shopkeepers of Hastings!. The local business community kicked in with great give away bags - which included a DVD of how to check your breast for lumps, along with other wonderful goodies. Well done Helen.
- The weather on 28th October was also fantastic for the picnic in Mornington Park. Jenny and the other Dragons selling their wares to raise funds, and a great family day.
Jo attended the first National Conference for young women with breast cancer – Up Close and Personal, which took place in Melbourne October this year. This was the first time that young women from around Australia had the opportunity to come together to a Conference designed specifically around the issues affecting them. This was a Conference organised by young women for young women.
The Conference aims were to inform; connect; and advocate. These aims were successfully delivered through the wide range of quality speakers who presented during the plenary and workshop sessions.
Recommendations that were put forward during these sessions included:
Better communication and awareness from GPs in diagnosing younger women is needed. Women should not be dismissed when presenting with symptoms simply because of their younger age.
Although information dissemination has improved there still appears to be discrepancy in information that is provided to young woman. It was recommended that all young women (pre-menopausal) should be informed about fertility options before treatment.
Financial guidelines and assistance:
Free mammograms and ultra sounds
Better financial support
Improving resources:
Links to specialists
Information for women with children
Accessing support groups
Support groups for partners; carers
Breast Care Nurses for all women
Advanced Young Women’s Group
Peer support program that helps connect women
Develop medical databases
Increasing awareness around young women’s issues
Transcripts, presentations and photos from the Conference will be made available on www.yabc2007conference.org late November.
Peninsula Dragon Fly's
Our members of Peninsula Dragon Fly's have returned from Caloundra, where they had a wonderful connection with women from all over the world, also
Your Stories
We have received an email from Jennifer Kerr who wants to know any stories of women suffering from breast cancer who are our of pocket in regards to expenses for treatment or loss of wages to do treatment or loss of wages to recover from treatments or even expense just to access treatments. She is campaigning to help these women help of a major publishing organisation in Australia. Her contact details are PO Box 419, Dromana, 3936Mobile: 0418 965753 PH: 03 59873716 email: kerrclan02@bigpond.com and her story is at
http://aww.ninemsn.com.au/section.aspx?sectionid=6002§ionname=pinkribbon
Writers' Group
The Writers Group started at Peninsula Private Hospital in the Chemo Room on Wed 31st October at 2.00pm. Sorry I'm late with this one, but call Gail on 97088034 if you are interested in joining.
Being Vigilant
After the positive feedback received re comments from Jo in the last Newsletter re secondaries, Jo advises the following:
What 'follow up' do we have/ need. Remember that different types of cancer diagnosis will require different follow up. Some doctors will do a baseline of CT and Bone Scans at diagnosis, some will not. Some doctors will continue to do scans at regular intervals some only at certain stages or when a symptom warrants it. Blood tests for tumour markers is only appropriate for women who at the time of diagnosis had an elevated marker, many women do not.
The best advice is to be alert but not alarmed and to be 'breast aware' as you know your body better than anyone and see it more regularly. But don't be afraid to get something unusual checked out. We all need to take care of ourselves. Cheers Jo
Regular follow-up is essential after treatment for early breast cancer.
After your treatment you should have regular appointments with your GP, surgeon, radiation oncologist or medical oncologist. Regular follow-up makes sure that if breast cancer comes back in the breast, breast tissue, or the other breast, it is promptly treated. Regular follow-up also allows your doctor to check for, and manage, any side effects from treatment that might develop after you have finished treatment. Speak to your doctor about your follow-up schedule.
Appropriate follow-up involves regular examinations and mammograms. It does not involve chest X-rays, bone scans or blood tests unless there is a problem that shows they are needed.
See your GP or specialist as soon as possible if you:
• feel a lump in either breast, or in the breast tissue left on your chest after mastectomy
• have any other symptoms in either breast, such as nipple discharge
• develop any other symptoms that concern you.
Do not wait until your regular appointment if you notice any new or unusual changes.
If you change doctors at any time, ask your new doctor to request your medical records from your previous doctor.
NBCC Information for women with Early Breast Cancer.
Cancer Council Victoria – Free Seminar for people living with advanced cancer:
“When cancer won’t go away”
Saturday 1 December, 10.30-2.30pm
Partners, family and Friends are encouraged to attend.
RSVP: PH: 13 11 20 or email cis@cancervic.org.au
Coming Up:
Nov 7th Annie Carter - with bras and bathers for us special gals
Dec 5th Christmas Dinner at the Grand Hotel - bring a Kris Kringle to the value of $10 [I'll book for 20 so just turn up on the night]
I won't be at the next meeting, I'll be sunning myself in Cairns while catching up with my daughter Jane, so in the meantime, stay healthy and take care.
Jann
Sunday, May 06, 2007
APRIL NEWSLETTER
April 07 Newsletter
Hi everyone,
We had a very interesting meeting this month, with nutritionist Julie Regan. She has sent some handouts and I'll have copies at the next meeting on 2nd May but notes from slides include:
Nutrition, Physical Activity and Cancer:
§ Vegetables and Fruit may be Protective
§ Moderate Exercise is Protective
§ Excessive Red Meat Consumption may be Hazardous
§ Preserved Red Meats are Hazardous
§ Burnt Meats may be Hazardous
§ Obesity is Hazardous
§ Alcohol is Hazardous
Best Evidence: Gastro-Intestinal Cancers; Endometrial Cancer; Lung Cancer
Some Evidence: Breast Cancer; Prostate Cancer; Kidney & Bladder Cancers
The Power of Antioxidants and Other Natural Protection:
§ Berries
§ Broccoli (cabbage, cauliflower, Brussels sprouts)
§ Tomatoes - cooked preferable
§ Red grapes (and wine)
§ Garlic
§ Tea – black and green
§ Carrots (beets, sweet potato, other yellow-orange vegetables)
§ Soy (phytoestrogens)
§ Whole grains
§ Oils - olive, fish
What Foods Pyramid:
Starting from the bottom [good foods] to the top [not so good foods]
§ Daily exercise and weight control
§ Wholegrain foods at most meals; plant oils [olive, soy, corn, sunflower, peanut and other vegetables oils.
§ Vegetables in abundance; Fruit 2 - 3 servings
§ Nuts and legumes 1 - 3 services
§ Fish, poultry and eggs 0 - 2 servings
§ Dairy or calcium supplement 1 - 2 services; Alcohol in moderation unless contradicted ie. with folate.
§ Red meat and butter - use sparingly; White rice, white bread, potatoes, pasta and sweets - use sparingly
The Top 20 Most Antioxidant Rich Foods:
1. Small red beans (dried) 2. Wild blueberries3. Red Kidney beans 4. Pinto beans 5. Blueberries 6. Cranberries7. Artichokes (cooked) 8. Blackberries 9. Prunes 10. Raspberries11. Strawberries 12. Red Delicious apples13. Granny Smith apples 14. Pecans 15. Sweet cherries 16. Black plums 17. Russet potatoes (cooked) 18. Black beans (dried) 19. Plums 20. Gala apples
Alcohol:
§ Alcohol increases the risk of cancers
§ Alcohol causes dehydration
§ Weakens your resolve to high fat foods
§ Men 2-4 standard drinks per day
§ Women 1-2 standard drinks per day
§ Try to have at least 3 alcohol free days per week
Daily Intake:
§ Recent research by the CSIRO suggests macronutrient intake for the general population wishing to lose body fat is:
§ 50% carbohydrate
§ 30% protein
§ 20% fat
In Summary:
§ Eat plenty of fruit and vegetables
§ Whole grain foods
§ Legumes – including soy beans and soy products
§ Fish and oils [oily fish = salmon, trout, mackerel, herring, sardines, pilchards, kippers, eel, whitebait, tuna (fresh only), anchovies, swordfish, cap, jack fish, katla, orange roughy]
§ Eat as much as your body needs
§ Exercise
Julie consults in Mt Martha, or is happy to come to your home. Her details are:
Julie Regan
Nutritionist
B. App. Sci. (HM), Gr. Dip Nutr.
0411 245 656
jsixsmith@optusnet.com.au
For those of you are gluten intolerant, the Mt Martha Bakery [the one behind the shops near the rear carpark] bakes a variety of gluten free bread every Tuesday
I borrowed one of the new books Jo purchased for us - Nutrition for Women and it has quite a section devoted to nutrition and breast cancer - very interesting and informative.
LIVE Mini Field of Women 2007
Following the success of the live Mini Field at the MCG in 2005, BCNA are organising a live Mini Field at Telstra Stadium in Sydney on 11th August before the Sydney Swans and St Kilda match. We voted not to attend as a group at the last meeting, but if any individuals are keen to attend contact BCNA or www.bcna.org.au.
News from members:
Jo and Helen attended an information day at the Cancer Council this month, and will update us at the meeting on Wednesday.
Karen Cox has been involved with a new double DVD that has been put together for the Cancer Council by Wayne Tindall. The DVD is for health professionals as well as newly diagnosed cancer patients of all types, as it explains what cancer is, and how it grows, and apparently how the different treatments attack the cancer. It includes information from health professionals and stories from cancer survivors. Karen is attending the launch on Monday 30th April at the MCG, so we'll look forward to more information and where we can get the DVD. Well done Karen.
March News from Peninsula Dragonflys - from Janice Russell
March has been a very busy month for the Dragonflys. The biggest news is, that Heather did a great job in securing a donation from Bernie at the Grand Hotel Mornington for a new boat. Well done Heather, thanks from all the team.
Our uniforms arrived and don't they look fabulous. Lots of very positive comments from other teams.
Lynda has been working hard on some fabulous artwork that we will be using for promotion when we go to Caloundra.
We had our first capsize, intentional of course. Fortunately it was warm weather and we all survived the ordeal. A few members were caught under the boat but did a very good job getting out. Not to many bruises. We also had Prue, our Vic. Rep and Michelle Hanton the Australian Rep in the boat. I think we have Patsy and Judy to thank for organising that. Thanks also to Alan Opie for coaching us on a very memorable day.
We had a full team attend a Regatta at Docklands during March Moomba. We had a great day even if we didn't win any of our races.
At the end of March about 15 Dragonflys took off for the Mile High Regatta at Falls Creek. What a fun weekend that was. We even managed to win a medal.
Happy Paddling - Janice Russell
The Beleura Group will be holding a picnic in Mornington Park in October for Breast Cancer Month - Sunday 28th October BYO everything and wear pink.
Coming UP:
May 2nd Aromatherapy hand massages - mmmmm
June 6th To be advised
July 4th Dinner at the Grand Hotel [because they are sooo good to us]
Aug 1st Anne Copper - bras and prothesis
Sept 5th Kindra Logan on Lymphedema
Oct 3rd Breast Cancer month - so we'll be discussing mini field, lunches etc.
Nov 7th A quiet catch up
Dec 5th Christmas Dinner at the Grand Hotel
We are also arranging Tai Chi and Yoga sessions in between meeting dates - will advise when confirmed.
See you all on 2nd May at The Bays for a chat and our aromatherapy hand massages.
Take care,
Jann
Hi everyone,
We had a very interesting meeting this month, with nutritionist Julie Regan. She has sent some handouts and I'll have copies at the next meeting on 2nd May but notes from slides include:
Nutrition, Physical Activity and Cancer:
§ Vegetables and Fruit may be Protective
§ Moderate Exercise is Protective
§ Excessive Red Meat Consumption may be Hazardous
§ Preserved Red Meats are Hazardous
§ Burnt Meats may be Hazardous
§ Obesity is Hazardous
§ Alcohol is Hazardous
Best Evidence: Gastro-Intestinal Cancers; Endometrial Cancer; Lung Cancer
Some Evidence: Breast Cancer; Prostate Cancer; Kidney & Bladder Cancers
The Power of Antioxidants and Other Natural Protection:
§ Berries
§ Broccoli (cabbage, cauliflower, Brussels sprouts)
§ Tomatoes - cooked preferable
§ Red grapes (and wine)
§ Garlic
§ Tea – black and green
§ Carrots (beets, sweet potato, other yellow-orange vegetables)
§ Soy (phytoestrogens)
§ Whole grains
§ Oils - olive, fish
What Foods Pyramid:
Starting from the bottom [good foods] to the top [not so good foods]
§ Daily exercise and weight control
§ Wholegrain foods at most meals; plant oils [olive, soy, corn, sunflower, peanut and other vegetables oils.
§ Vegetables in abundance; Fruit 2 - 3 servings
§ Nuts and legumes 1 - 3 services
§ Fish, poultry and eggs 0 - 2 servings
§ Dairy or calcium supplement 1 - 2 services; Alcohol in moderation unless contradicted ie. with folate.
§ Red meat and butter - use sparingly; White rice, white bread, potatoes, pasta and sweets - use sparingly
The Top 20 Most Antioxidant Rich Foods:
1. Small red beans (dried) 2. Wild blueberries3. Red Kidney beans 4. Pinto beans 5. Blueberries 6. Cranberries7. Artichokes (cooked) 8. Blackberries 9. Prunes 10. Raspberries11. Strawberries 12. Red Delicious apples13. Granny Smith apples 14. Pecans 15. Sweet cherries 16. Black plums 17. Russet potatoes (cooked) 18. Black beans (dried) 19. Plums 20. Gala apples
Alcohol:
§ Alcohol increases the risk of cancers
§ Alcohol causes dehydration
§ Weakens your resolve to high fat foods
§ Men 2-4 standard drinks per day
§ Women 1-2 standard drinks per day
§ Try to have at least 3 alcohol free days per week
Daily Intake:
§ Recent research by the CSIRO suggests macronutrient intake for the general population wishing to lose body fat is:
§ 50% carbohydrate
§ 30% protein
§ 20% fat
In Summary:
§ Eat plenty of fruit and vegetables
§ Whole grain foods
§ Legumes – including soy beans and soy products
§ Fish and oils [oily fish = salmon, trout, mackerel, herring, sardines, pilchards, kippers, eel, whitebait, tuna (fresh only), anchovies, swordfish, cap, jack fish, katla, orange roughy]
§ Eat as much as your body needs
§ Exercise
Julie consults in Mt Martha, or is happy to come to your home. Her details are:
Julie Regan
Nutritionist
B. App. Sci. (HM), Gr. Dip Nutr.
0411 245 656
jsixsmith@optusnet.com.au
For those of you are gluten intolerant, the Mt Martha Bakery [the one behind the shops near the rear carpark] bakes a variety of gluten free bread every Tuesday
I borrowed one of the new books Jo purchased for us - Nutrition for Women and it has quite a section devoted to nutrition and breast cancer - very interesting and informative.
LIVE Mini Field of Women 2007
Following the success of the live Mini Field at the MCG in 2005, BCNA are organising a live Mini Field at Telstra Stadium in Sydney on 11th August before the Sydney Swans and St Kilda match. We voted not to attend as a group at the last meeting, but if any individuals are keen to attend contact BCNA or www.bcna.org.au.
News from members:
Jo and Helen attended an information day at the Cancer Council this month, and will update us at the meeting on Wednesday.
Karen Cox has been involved with a new double DVD that has been put together for the Cancer Council by Wayne Tindall. The DVD is for health professionals as well as newly diagnosed cancer patients of all types, as it explains what cancer is, and how it grows, and apparently how the different treatments attack the cancer. It includes information from health professionals and stories from cancer survivors. Karen is attending the launch on Monday 30th April at the MCG, so we'll look forward to more information and where we can get the DVD. Well done Karen.
March News from Peninsula Dragonflys - from Janice Russell
March has been a very busy month for the Dragonflys. The biggest news is, that Heather did a great job in securing a donation from Bernie at the Grand Hotel Mornington for a new boat. Well done Heather, thanks from all the team.
Our uniforms arrived and don't they look fabulous. Lots of very positive comments from other teams.
Lynda has been working hard on some fabulous artwork that we will be using for promotion when we go to Caloundra.
We had our first capsize, intentional of course. Fortunately it was warm weather and we all survived the ordeal. A few members were caught under the boat but did a very good job getting out. Not to many bruises. We also had Prue, our Vic. Rep and Michelle Hanton the Australian Rep in the boat. I think we have Patsy and Judy to thank for organising that. Thanks also to Alan Opie for coaching us on a very memorable day.
We had a full team attend a Regatta at Docklands during March Moomba. We had a great day even if we didn't win any of our races.
At the end of March about 15 Dragonflys took off for the Mile High Regatta at Falls Creek. What a fun weekend that was. We even managed to win a medal.
Happy Paddling - Janice Russell
The Beleura Group will be holding a picnic in Mornington Park in October for Breast Cancer Month - Sunday 28th October BYO everything and wear pink.
Coming UP:
May 2nd Aromatherapy hand massages - mmmmm
June 6th To be advised
July 4th Dinner at the Grand Hotel [because they are sooo good to us]
Aug 1st Anne Copper - bras and prothesis
Sept 5th Kindra Logan on Lymphedema
Oct 3rd Breast Cancer month - so we'll be discussing mini field, lunches etc.
Nov 7th A quiet catch up
Dec 5th Christmas Dinner at the Grand Hotel
We are also arranging Tai Chi and Yoga sessions in between meeting dates - will advise when confirmed.
See you all on 2nd May at The Bays for a chat and our aromatherapy hand massages.
Take care,
Jann
Monday, November 06, 2006
Breast Intentions Support Group
Breast Intentions, a support group for younger women on the Mornington Peninsula, Victoria, meets the first Wednesday of the month 7-9pm at The Bays Hospital, Vale St, Mornington from Feb-Dec. The July and december meetings are dinners at The Grand Hotel Main St Mornington. All Welcome
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